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Joined 1 year ago
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Cake day: June 11th, 2023

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  • I hate to say it, but while hopeful, it’s unlikely.

    I’ve been around the CFS/ME community since my husband got it 6 years ago. There a small handful of people who have recovered, but generally they’ve been “misdiagnosed” with CFS and then correctly diagnosed/treated. The majority live with it for the rest of their lives. It’s also why the life expectancy is only 50 - many simply cannot live with that level of pain/suffering day in, day out without any real hope of improvement/relief. Its a dreadful illness.


  • My husband has ME/CFS, like the Physics Girl. It’s an absolutely devastating illness. He was a very active 35 when he was told there’s no cure, not even a treatment, and that pain/fatigue was his life now for the rest of his days.

    We’ve been around this long enough to see promising drug/cure/treatment/diagnostic tests come and disappear, month after month, year after year. The influx of funding/awareness linked to Long Covid is incredibly welcome, but many instances are repeats of previous ME/CFS research, so it holds up previous findings but doesnt drive anything forward. There’s not been any real progress in the last 2 years, and the funding/focus is waning. I may be jaded, but hopes are low. I also sincerely hope I’m wrong.










  • Replaced by whom?

    I get that some people will step up into being Mods, but modding is hard and thankless work - I’ve done it a few times over the years.

    There’s always subs crying out for new Mods, so you’ll end up scraping the barrel for Mods, then the quality will go down, people will get pissed off. With thousands of Subs suddenly needing modding, there’s simply not enough volunteers to go around.

    One of Reddits unsung resources was its army of Mods keeping the content of some quality (define that as you will). Reddit really is cutting its nose off right now.